Home, Settling In, Spreading Love & Awareness, LifeSum.

Can you believe it?

No, I really can’t. 

I never thought I’d see the light of day again. 

Stepping out of the hospital yesterday for the first time in two weeks was odd. Seeing traffic, cars and people almost felt alien to me!

After being in a place where I felt the odd ball, I now felt the odd ball in my usual world. 

With feeling so unwell with chest pains and well pain all over and being ignored, dismissed and not given treatment. I felt that things could end at anytime. I didn’t feel safe, I definitely didn’t feel cared for. I feel so unwell and was experiencing symptoms that could be fatal. So there were many times I wondered if I’d ever see the outside world again. 

It was like being in prison, serving a life sentence. 

They tried to act unhappy about me leaving but in reality we know they wanted me gone. I was not the norm, they couldn’t tarnish me with the same brush that they tarnished the others. To prove they were treating what they are supposedly there to treat. The fact they couldn’t really bothered them. As they had no idea what to do with me.

I went against everything they stood for, demanding food, moving up the levels every 2 days instead of every week.

I was there for two weeks and I’d moved up six levels.

They hated that fact.

Every Wednesday they have a community meeting where they read out and discuss suggestions that the paitents have made. I made sure that I left mine .. 

I suggested that they include more fruits and veggies into the meal plans. 2 portions of fruit or vegetables a day is simply not enough. The Government guidelines are 5 portions a day! I also said that more healthy fats such as nuts should be included. As I went a week with no nuts. As I was the only one having or ordering nuts they weren’t prepared to order more in for just one person.

I went on to say that there should be a group that talks about diet in the sense of the body. What minerals and vitamins we require, what are their jobs and symptoms of lacking them. So that paitents can learn to listen to their bodies better and engage in really understanding what the body is craving, then listening to those cravings over their minds.

Not just telling them they need to eat or they will be malnourished and die. 

Duh?!

Everyone knows that.

But we don’t all know the symptoms of lack of magnesium and why we need it for example. 

So hopefully I have left my footprint well and truly - maybe in a good way or a bad way. 

I helped Emma one of the paitents create a goal of travelling with her best friend to Canada to see her cousin and because she has never left England. She said she wanted to book it for summertime and so it gave her the push to work towards to get there. 

I helped Kerry one of the staff think about Lyme or auto-immune Disease as the cause for her little’s boy’s ill health. He was becoming intolerant to chemicals, materials and a lot of foods. With recurring chest infections. So I gave her the details of Armin Labs and encouraged her to explore that route. Of course no doctor had ever mentioned these possibilities to her before. 

I always nattered on about travel, Christmas, families and so on. 

I have had Kerry and Maria in fits of giggles at the dining table.

I had staff members reserving seats at our table so they knew they would and could talk.

Staff felt comfortable sharing their stories with me on their personal & work lives.

I hope the paitents and staff miss me a little. I would hope I brightened up the place slightly.

I was the only one who made the effort to talk anyway!

I found it extremely difficult being around such negative vibes. Everyone was so self absorbed and selfish. They didn’t think about anyone else. I wasn’t used to that. 

My Mum always brought me up to be polite, share, practise kindness and be respectful. There was none of that going on and when I tried to practise the above and I was faced with brick walls. I didn’t want be around that negativity as it was pulling my already low mood down further. 

***

I didn’t post an update yesterday as to be honest all I really did yesterday was get back into normal life and eat. 

I wanted to settle in and then update you all. 

***

I can’t quite believe that a decade - ten whole years ago, today. I was sat in the Bupa hospital in Manchester.

I sat there nervous but excited. Excited to get better. This hernia had caused me a lot of pain and I had battled through training and had to take many weeks off.

All I wanted and hoped for was to be back in the pool ASAP. 

Little did I know at the time this was just the beginning.

Despite how painful and endless struggle these ten years have been I am hoping that the next ten years are filled with more happiness and less pain. 

I have a few new projects and things in the pipeline to look forward to and hopefully more positive things will come out of them. 

After two weeks of negativity to the point you begin to lose faith and hope it’s so refreshing to be back around positive, supportive people. 

And look...

I get home, back around positive people and then I get super exciting emails. 

Doesn’t that show that law of attraction really does work.

Negativity spreads negativity. 

I REFUSE to be around that.

The people around me didn’t seem to want to get well.. they cried and kicked off for attention.

And 

Because I didn’t do that - I wasn’t listened to.

What the hell, she can’t be that bad. 

I was still alive - just. 

That’s all that mattered to them. 

I am a fighter and fight hard. They are trapped unfortunately in an illness that causes them to be very selfish. They don’t consider the strain on their family and friends etc. They are too self absorbed. Wanting to stay unwell and within their comfort zone.

I may be accused of pushing things too hard. 

BUT..

At least I am willing to keep fighting. 

For now... I am resting and doing activities I enjoy. 

Of course DIY’ing a lot of my cards and Xmas gifts. As love to add the Sophantastic touch. 

I also want to mention that I am using the LifeSum app to help me track my nutrition and everything I need to get back on the mend.

You can scan or type in the food you eat and know if you are eating what you and your body needs. It’s super easy and amazing for fellow chronic illness sufferers who have to eat alternative diets. With gluten, wheat and dairy free favourites added to the app and easy to find.

Many apps don’t have this feature!

If you want help tracking your nutrition please check out LifeSum - https://lifesum.com/sv/

LifeSum

It’s FREE so don’t hesisate to try it and let me know what you think.

***

Again.. thank you for your lovely, supportive messages, gifts, support and following you are all amazing. My beautiful souls.

Shout out to David - after purchasing my cookbooks and enjoying the recipes and food I sent David a signed keepsake of United Tastes Of America. I am so pleased he recieved it and loves it. Enjoy !

Love and peace as always,

S

Xoxo

#Lymedisease #Hospitalstays #Treatment #Journey #Treatmentjourney