Life with Lyme,
Knows no time,
The pain is real,
Everyday I pray to heal,
Doctors want me in and out,
Not willing to know or understand what Lyme is all about,
The bad days are bad,
For small victories I am glad,
I can’t live,
For that - Lyme I can’t forgive,
If I get the chance to explore,
I suffer more,
The bacteria take hold,
No matter what we are told,
Finding balance is hard,
Our hope and faith we can’t discard,
We watch life from afar,
Truly invisible - will we ever be a shining star?
Invisible in person and illness you see,
I have lost me,
Forgotten and you disappear,
Death you no longer fear,
Doctors cause me more pain,
Calling me insane,
I wish all of you,
Could walk in my shoes and live with pain as I do,
Maybe then you would cry too,
Would you weather the storm through?
I am a girl you don’t see,
Too wrapped up in your world that is so free,
That is fine by me,
But by my side don’t claim to be,
I miss,
The bliss,
Of a life that was full,
Never dull,
On the plane,
Adventures that were inane,
Filled with successes,
From swimming costumes to ball dresses,
Eating foods in amazing places,
Experiencing cultures and different faces,
There were red flags of ill health all along,
I was to stubborn and strong,
To really be open about how bad I was feeling,
My career is healing,
Sleepless nights,
Aren’t filled with star lights,
They are filled with monsters you can feel eating away,
Praying to just be able to fight through the day,
People make judgements but they aren’t in your shoes,
They believe you make your own rules,
My rules would scream life and fun,
To once again see the sun,
That smile,
Pushes you the extra mile,
True friends,
Ride with you round the bends,
The bacteria that is within me,
Will never rest you see,
Day and night the fight goes on,
My rest time gone,
The candle burns at both ends,
The cycle never ends,
Who defends,
My family and friends,
They deserve better,
Sophie their go-getter,
Lyme,
Knows no time,
Feel free,
To lie with me,
This disease,
Is no breeze,
In time you wish you could freeze,
Living life with ease,
You colour so bright,
Write poetry through the night,
Your passion is your power and soul,
Down your path you continue to stroll,
Lift you head,
Yes you are stuck in bed,
You have love in your heart,
Of life and the world you are still a part,
Lyme,
Knows no time,
Sit here,
Wipe that tear,
Just knowing you are near,
Helps me face any fear.
S
Xoxo
